Table 1 Opinion scores regarding the terms “DSD” and “ambiguous genitalia”
From: Congenital adrenal hyperplasia patient perception of ‘disorders of sex development’ nomenclature
What do you think of the term DSD? | Classical females vs Other CAH | 2.0 ± 1.0 vs 2.1 ± 0.9 |
Parents vs Patients | 2.0 ± 1.0 vs 2.2 ± 1.0 | |
US vs non-US patients | 2.0 ± 1.0 vs 2.2 ± 1.0 | |
Surgical vs non-surgical | 2.0 ± 1.0 vs 2.1 ± 1.2 | |
What do you think of the term ambiguous genitalia? | Classical females vs Other CAH | 3.0 ± 1.1 vs 3.4 + 0.9* |
Parents vs Patients | 3.2 ± 1.1 vs 3.1 ± 1.0 | |
US vs non-US patients | 3.2 ± 1.1 vs 3.0 ± 1.2 | |
Surgical vs non-surgical | 3.0 + 1.1 vs 3.0 + 1.2 |