Volume 2013 Supplement 1

7th Asia Pacific Paediatric Endocrine Society (APPES) Biennial Scientific Meeting

Open Access

Psychosocial problems in children with congenital adrenal hyperplasia in Cipto Mangunkusumo Hospital, Jakarta, Indonesia

  • I Nyoman Arie Purwana1,
  • Frida Soesanti1,
  • Aman B Pulungan1 and
  • Jose RL Batubara1
International Journal of Pediatric Endocrinology20132013(Suppl 1):P122

https://doi.org/10.1186/1687-9856-2013-S1-P122

Published: 3 October 2013

Congenital Adrenal Hyperplasia (CAH) is a chronic illness that requires lifelong medication and, in some cases, frequent hospitalizations. This situation will bring psychosocial consequences for the patients and their families. This study aims are to determine the psychosocial problems in children with CAH in Cipto Mangunkusumo Hospital.

Data was taken from medical records in Pediatrics Endocrinology Clinic of Cipto Mangunkusumo Hospital, Jakarta, Indonesia during 2007-2012. Out of 96 patients were diagnosed as CAH, 76 patients aged 4-16 years included in this study. Patient’s parents were interviewed by telephone for screening of psychosocial problems using the Pediatrics Symptom Checklist-17 (PSC-17). Patients and their parents were also asked about their expectations in the future.

Out of 76 patients, Twenty five patients had 46,XX karyotype, 2 patients had 46,XY karyotype, while 49 patients have no karyotipe data available. Most children were raised in accordance with the results of their karyotype finding. Few parents reported some behaviour problems with their children according to PSC-17.

Our study suggests that few children with CAH had a psychosocial dysfunction that might be related to their physical condition. Improving knowledge and encouraging parent to join with CAH support group were important to help families with CAH in Indonesia.

Authors’ Affiliations

(1)
Division of Endocrinology, Department of Pediatrics, Cipto Mangunkusumo Hospital

Copyright

© Purwana et al; licensee BioMed Central Ltd. 2013

This article is published under license to BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

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