Table 4 Experienced burden of the condition (by parents)
| Â | 0-4 year | 4-12 year | 12-18 year | Total | ||||
|---|---|---|---|---|---|---|---|---|
| Â | n | (%) | n | (%) | n | (%) | n | (%) |
Total | 12 | (100) | 62 | (100) | 32 | (100) | 106 | (100) |
Constraints in daily life ((totally) agree) | 0 | - | 6 | (10) | 2 | (6) | 8 | (8) |
Adrenal crisis experienced (yes) | 3 | (25) | 20 | (32) | 12 | (38) | 35 | (33) |
Fear for adrenal crisis ((totally) agree) | 3 | (25) | 15 | (24) | 0 | - | 18 | (17) |
School absence due to CAH (yes) | n/a | - | 19 | (31) | 9 | (28) | 28 | (30) |
Influence on condition ((totally) agree) | 9 | (75) | 38 | (61) | 19 | (59) | 66 | (62) |
General health (good/very good/excellent) | 12 | (100) | 60 | (97) | 30 | (94) | 102 | (96) |