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Table 4 Experienced burden of the condition (by parents)

From: Physical, social and societal functioning of children with congenital adrenal hyperplasia (CAH) and their parents, in a Dutch population

  0-4 year 4-12 year 12-18 year Total
  n (%) n (%) n (%) n (%)
Total 12 (100) 62 (100) 32 (100) 106 (100)
Constraints in daily life
((totally) agree)
0 - 6 (10) 2 (6) 8 (8)
Adrenal crisis experienced (yes) 3 (25) 20 (32) 12 (38) 35 (33)
Fear for adrenal crisis
((totally) agree)
3 (25) 15 (24) 0 - 18 (17)
School absence due to CAH (yes) n/a - 19 (31) 9 (28) 28 (30)
Influence on condition
((totally) agree)
9 (75) 38 (61) 19 (59) 66 (62)
General health
(good/very good/excellent)
12 (100) 60 (97) 30 (94) 102 (96)
  1. n/a = not applicable