Table 1 Milestones for transfer to adult care.

(1) Understanding etiology, basic genetics, pathophysiology of congenital adrenal hyperplasia

(2) Understanding hormone replacement therapies and knowledge of sick day/stress dose management

(3) Understanding impact of CAH on sexuality and reproductive health

(4) Demonstrating responsibility for own healthcare

(a) Knowledge of medications

(b) Calling for own prescription refills and scheduling office visits

(c) Independently communicating with health care providers

(d) Knowledge regarding when to seek emergency medical attention

(e) Comprehension of health insurance coverage and requirement

(5) Readiness to transition to adulthood by attending college or entering the workforce

(6) Ownership of his/her medical history in a concise format

(7) Preparation of parents for their new role as spectators/advisors