Domain/Category/Subcategory | Frequency |
---|---|
Domain 1: Physical functioning | general |
Normal functioning | general |
Able to function well with no or minimal CAH-related restrictions | typical |
Normal functioning except for having to take medication daily | variant |
Sexual functioning | general |
Increased risk for sickness | general |
Medication | general |
General medical regimens | typical |
Stress dosing | typical |
General side effects from medication | typical |
Weight concerns from medication | typical |
Physical side effects of CAH | typical |
Adrenal Crises and hospitalizations | typical |
Reproductive functioning | variant |
Domain 2: Psychological functioning | general |
Processes involved in understanding or becoming aware of CAH | general |
Understanding of identity | general |
Normal | variant |
Different | variant |
Emotions and cognitions related to CAH | general |
Negative | general |
Positive | variant |
Mental health concerns | typical |
Sexuality | variant |
Gender identity and role | variant |
Concentration and learning issues | variant |
Domain 3: Interpersonal relationships and processes | general |
Disclosure and others' awareness and knowledge of CAH | general |
Impact of CAH on others | general |
Interaction of CAH's genetic component with relationships | general |
Utilization of support groups | general |
Supportive people and behaviors | general |
Parents | general |
Other important relationships | general |
Romantic Partners | typical |
Unsupportive people and behaviors | typical |
Impact of CAH on dating | typical |
Having never met anyone else with CAH | typical |
Domain 4: Healthcare experiences of women with CAH | General |
Physicians | general |
Physician's knowledge of CAH | general |
Negative medical interventions | general |
Positive medical interventions | typical |
Referrals | typical |
Mental health clinicians: therapists, psychologists and psychiatrists | general |
Reasons for and goals of mental health treatment/therapy | general |
Positive psychotherapeutic interventions | general |
Negative psychotherapeutic interventions | variant |
Clinicians' knowledge of CAH | variant |
Intrapersonal processes in healthcare treatment | general |
Domain 5: Recommendations for healthcare professionals | general |
Helpful therapeutic traits | general |
The need for more education about CAH | typical |
Things to consider when treating individuals with CAH | typical |
Emotional impact | typical |
Medical considerations | typical |
Connect individuals with support groups | variant |
The importance of access to therapeutic services | variant |
Domain 6: Systemic considerations | general |
Generational and cohort differences in women with CAH | typical |
Availability and appropriateness of care | typical |
Insurance and other financial concerns related to CAH | typical |
Societal biases and expectations | variant |