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Table 3 Parent Self-Report questionnaire scores for children with DSD and children with other Endocrine conditions

From: Parent-reported outcomes in young children with disorders/differences of sex development

Self-Report DomainsDSD SampleEndocrine SampleDSD vs Endocrine
naSubscale score, median (range)SDSb, median (range)naSubscale score, median (range)SDSb, median (range)p valuec
Communication and Information
 Mothers4275.00 (37.50, 100.00)0.01 (−2.21, 1.49)3475.00 (25.00, 100.00)0.01 (−2.95, 1.49)NS
 Fathers1375.00 (37.50, 87.50)0.22 (−1.40, 0.76)962.5 (0.00, 87.50)−0.32 (−3.02, 0.76)NS
Talking to Others
 Mothers4162.50 (35.00, 100.00)−0.06 (− 1.18, 1.47)3483.13 (43.75, 100.00)0.78* (− 0.83, 1.47)NS
 Fathers1281.25 (37.50, 100.00)−0.25 (−2.86, 0.86)990.00 (45.00, 100.00)0.27 (−2.41, 0.86)NS
Future Concerns
 Mothers4250.00 (0.00, 100.00)−0.28 (−2.14, 1.73)3585.71 (3.57, 100.00)1.17* (−2.00, 1.73)0.02
 Fathers1357.14 (21.43, 92.86)−1.60* (−4.21, 1.00)985.71 (50.00, 100.00)0.48 (− 2.13, 1.52)0.04
Medication
 Mothers1466.67 (0.00, 100.00)−0.13 (−2.50, 1.05)2583.33 (0.00, 100.00)0.31 (−2.50, 1.05)NS
 Fathers6100.00 (77.78, 100.00)1.80* (1.01, 1.80)3100.00 (75.00, 100.00)1.80 (0.92, 1.80)NS
Clinic Visit
 Mothers3870.83 (56.25, 100.00)−0.05 (−1.69, 1.00)3291.67 (33.33, 100.00)0.70* (−1.37, 0.99)NS
 Fathers1187.50 (37.50, 100.00)2.10* (0.16, 2.58)868.75 (50.00, 91.67)1.37* (0.64, 2.60)NS
Surgery
 Mothers1112.50 (0.00, 91.67)−1.02 (−1.51, 2.14)431.30 (0.00, 83.30)0.47 (−1.02, 1.80)NS
 Fathers441.70 (25.0, 100.00)−1.61 (−2.29, 0.77)112.50 (12.50, 12.50)−2.80 (− 2.80,-2.80)NS
Stigma
 Mothers421.60 (1.00. 2.67)−0.25 (−1.21, 1.44)351.40 (1.00, 3.20)−0.57 (−1.21, 2.29)NS
 Fathers131.40 (1.00, 2.10)−0.36 (−1.27, 1.23)91.60 (1.00, 2.11)0.09 (−1.27, 1.25)NS
PHQ-4
 Mothers401.00 (0.00, 8.00)0.54 (0.89, 1.96)340.00 (0.00, 6.00)0.89 (−1.25, 0.89)NS
 Fathers120.00 (0.00, 6.00)0.89 (0.89, 1.25)90.00 (0.00, 4.00)0.89 (−0.54, 0.89)NS
  1. an’s vary by domain due to item responses and not all children have had surgery or take medication. bSDS standard deviation score; subscale values are presented as SDS based on reference data. cp values have been adjusted for multiple comparisons using false discovery rates; significance has been assigned at adjusted p < 0.05. *p < 0.05, compared to SDS of zero. All p values have been adjusted for multiple comparisons