Table 3 Parent Self-Report questionnaire scores for children with DSD and children with other Endocrine conditions
From: Parent-reported outcomes in young children with disorders/differences of sex development
Self-Report Domains | DSD Sample | Endocrine Sample | DSD vs Endocrine | ||||
|---|---|---|---|---|---|---|---|
na | Subscale score, median (range) | SDSb, median (range) | na | Subscale score, median (range) | SDSb, median (range) | p valuec | |
Communication and Information | |||||||
 Mothers | 42 | 75.00 (37.50, 100.00) | 0.01 (−2.21, 1.49) | 34 | 75.00 (25.00, 100.00) | 0.01 (−2.95, 1.49) | NS |
 Fathers | 13 | 75.00 (37.50, 87.50) | 0.22 (−1.40, 0.76) | 9 | 62.5 (0.00, 87.50) | −0.32 (−3.02, 0.76) | NS |
Talking to Others | |||||||
 Mothers | 41 | 62.50 (35.00, 100.00) | −0.06 (− 1.18, 1.47) | 34 | 83.13 (43.75, 100.00) | 0.78* (− 0.83, 1.47) | NS |
 Fathers | 12 | 81.25 (37.50, 100.00) | −0.25 (−2.86, 0.86) | 9 | 90.00 (45.00, 100.00) | 0.27 (−2.41, 0.86) | NS |
Future Concerns | |||||||
 Mothers | 42 | 50.00 (0.00, 100.00) | −0.28 (−2.14, 1.73) | 35 | 85.71 (3.57, 100.00) | 1.17* (−2.00, 1.73) | 0.02 |
 Fathers | 13 | 57.14 (21.43, 92.86) | −1.60* (−4.21, 1.00) | 9 | 85.71 (50.00, 100.00) | 0.48 (− 2.13, 1.52) | 0.04 |
Medication | |||||||
 Mothers | 14 | 66.67 (0.00, 100.00) | −0.13 (−2.50, 1.05) | 25 | 83.33 (0.00, 100.00) | 0.31 (−2.50, 1.05) | NS |
 Fathers | 6 | 100.00 (77.78, 100.00) | 1.80* (1.01, 1.80) | 3 | 100.00 (75.00, 100.00) | 1.80 (0.92, 1.80) | NS |
Clinic Visit | |||||||
 Mothers | 38 | 70.83 (56.25, 100.00) | −0.05 (−1.69, 1.00) | 32 | 91.67 (33.33, 100.00) | 0.70* (−1.37, 0.99) | NS |
 Fathers | 11 | 87.50 (37.50, 100.00) | 2.10* (0.16, 2.58) | 8 | 68.75 (50.00, 91.67) | 1.37* (0.64, 2.60) | NS |
Surgery | |||||||
 Mothers | 11 | 12.50 (0.00, 91.67) | −1.02 (−1.51, 2.14) | 4 | 31.30 (0.00, 83.30) | 0.47 (−1.02, 1.80) | NS |
 Fathers | 4 | 41.70 (25.0, 100.00) | −1.61 (−2.29, 0.77) | 1 | 12.50 (12.50, 12.50) | −2.80 (− 2.80,-2.80) | NS |
Stigma | |||||||
 Mothers | 42 | 1.60 (1.00. 2.67) | −0.25 (−1.21, 1.44) | 35 | 1.40 (1.00, 3.20) | −0.57 (−1.21, 2.29) | NS |
 Fathers | 13 | 1.40 (1.00, 2.10) | −0.36 (−1.27, 1.23) | 9 | 1.60 (1.00, 2.11) | 0.09 (−1.27, 1.25) | NS |
PHQ-4 | |||||||
 Mothers | 40 | 1.00 (0.00, 8.00) | 0.54 (0.89, 1.96) | 34 | 0.00 (0.00, 6.00) | 0.89 (−1.25, 0.89) | NS |
 Fathers | 12 | 0.00 (0.00, 6.00) | 0.89 (0.89, 1.25) | 9 | 0.00 (0.00, 4.00) | 0.89 (−0.54, 0.89) | NS |