Disorders of sex development (DSD) web-based information: quality survey of DSD team websites

Ernst, Michelle M.; Chen, Diane; Kennedy, Kim; Jewell, Tess; Sajwani, Afiya; Foley, Carmel; Sandberg, David E.

doi:10.1186/s13633-019-0065-x

International Journal of Pediatric Endocrinology

Table 2 SMOG, PEMAT, DISCERN & Completeness ratings for Team Pages (TP) and Team Link (TL) webpages

From: Disorders of sex development (DSD) web-based information: quality survey of DSD team websites

Site	Webpage	Webpage Description	SMOG	PEMAT		DISCERN		COMPLETE-NESS
			SMOG	Understandability	Actionability	Hormone	Surgery	COMPLETE-NESS
			Grade Level^a	%	%	max = 75	max = 75	%
A	TP 1	Introduction: DSD clinic	16	62	20			48
	TP 2	DSD Treatments		75	20
	TP 3	DSD Types		69	20
	TP 4	What to expect at first DSD Clinic appointment		62	20
	TL1	Health topic: CAH	18	62	20
B	TP 1	Introduction: DSD team	14	69	40			52
	TP 2	DSD detection and diagnosis		67	0
	TP 3	DSD treatments		69	40	39	43
	TL 1	DSD research study recruitment	14	69	40
	TL 2	Health topic: CAH	13	69	20	31	19
	TL 3	Health topic: Hypospadias	14	69	40	32	31
	TL 4	Introduction: DSD program	15	69	20
	TL 5	Overview: DSD and Gender program	17	81	33
C	TP 1	Overview: DSD Clinic	16	67	0			40
	TP 2	DSD Types		69	0
	TP 3	DSD Treatments		67	0	23	28
	TP 4	What to expect at first DSD Clinic appointment		67	0
	TP 5	DSD clinic contact information		62	40
	TL 1	Overview: DSD	13	69	0	19	18
	TL 2	Health topic: AIS	13	69	0	32	25
	TL 3	Health topic: CAH	12	69	40	34	31
	TL 4	Health topic: Hypospadias	12	75	40		35
	TL 5	Health topic: MGD	11	69	20	26	26
D	TP 1	Overview: DSD program	17	69	40		18	Not coded^b
	TP 2	DSD types and treatment		70	0
	TP 3	DSD Clinic Contact Information		62	20
	TP 4	Health topic: DSD and Ambiguous genitalia		69	20	22	26
	TP 5	Health topic: Cloacal malformations		62	20
	TP 6	Health topic: CAH		62	40
	TP 7	Health topic: Gonadal dysgenesis		62	20
	TP 8	Health topic: Vaginal agenesis		69	20		38
	TL 1	Overview: DSD program	18	67	0
	TL 2	Overview: CAH care center	17	69	40
	TL 3	FAQ: CAH	14	69	0	42	32
E	TP 1	DSD Resources	16	56	0			40
	TP 2	Overview: DSD clinic		69	20
	TP 3	Health topic: Ambiguous genitalia and Gender determination		69	0
	TP 4	Overview: DSD and Gender program		69	20
	TL 1	Health topic: Micropenis	14	69	0	29
	TL 2	Health topic: Hypospadias	14	69	20		23
	TL 3	Health topic: Ambiguous genitalia and DSD	14	69	0	19	23
F	TP 1	Overview: DSD and DSD Clinic	15	69	0			56
	TP 2	Overview: DSD and DSD Clinic, DSD Resources		69	40
	TP 3	DSD Types		67	0
	TL 1	Health topic: Turner Syndrome	10	62	0
	TL 2	DSD decision-making checklists	17	44	0
	TL 3	CAH decision making checklist	9	69	60
	TL 4	Hypospadias decision-making checklist	9	81	50		33
	TL 5	MRKH decision-making checklist	9	69	60		39
	TL 6	Overview: DSD	11	69	0	17	19
	TL 7	Health topic: CAH (newborn)	12	75	33	40	34
	TL 8	Health topic: CAH	11	75	33	36	36
G	TP 1	Overview: DSD program	13	85	40			40
	TP 2	DSD Clinic Contact Information		50	40
	TP 3	What to expect at first DSD Clinic appointment		60	20
	TP 4	DSD Resources		62	20
	TL 1	DSD detection and diagnosis	13	69	40		26
	TL 2	Health topic: Hypospadias	10	81	33		40
	TL 3	Health topic: MRKH	11	69	40		38
	TL 4	Health topic: Turner Syndrome	14	69	60	33	27
	TL 5	Health topic: Hypospadias repair	9	69	60
	TL 6	Reproductive organs images		69	20
	TL 7	Decision-making checklist	8	77	60
H	TP 1	Overview: DSD clinic	16	69	80			20
	TL 1	Health topic: DSD	13	69	0	18	31
	TL 2	Health topic: Hypospadias	14	69	0		25
I	TP 1	Introduction: DSD and DSD team	15	67	20			36
	TP 2	What to expect at first DSD Clinic appointment		69	40
	TP 3	DSD Types		70	40
	TP 4	DSD Resources		69	0
	TP 5	DSD Research Studies		69	20
	TL 1	Glossary: DSD terms	13	69	20		27
	TL 2	Glossary: DSD tests	15	54	20	33	28
J	TP 1	Overview: DSD and DSD Program	17	69	40			12
		Mean	13.5	67.9	23.5	29.2	29.3	38.2
		SD	2.6	6.2	19.7	8.0	7.0	14.3
		Minimum	8	44	0	17	18	12
		Maximum	18	85	80	42	43	56

^aGrades 13–16 indicate college level education needed to ensure complete comprehension and 17–18 reflect graduate training education necessary
^bSite not coded because webpages changed prior to completeness ratings

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ISSN: 1687-9856

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