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Table 1 Measures used in study and scoring process

From: Disorders of sex development (DSD) web-based information: quality survey of DSD team websites

Tool Validated A measure of Coding plan Scoring
Simple Measure of Gobbledygook (SMOG) Yes Reading level (grade) of written material All DSD Team Pages reviewed as one document, resulting in a single score
DSD Team Links and Other Webpages scored individually
Count multisyllabic words across 30 sentences; sentences taken from beginning, middle and end of document
Total sum converted into grade level
Patient Education Materials Assessment Tool (PEMAT) Yes Understandibility and actionability of information All webpages (DSD Team Pages, DSD Team Links and Other Pages) scored individually
Each webpage received both understandability and actionability score
2 scales: “understandability” (17 items), “actionability” (7 items)
Rating: 0 (Disagree) or 1 (Agree) that information presented on a page met item criteria
70% items meeting criteria considered to be acceptable for each scale
DISCERN Yes Quality of online health information regarding specific treatment choices Any webpages with information related to hormone replacement or surgery scored individually
Each treatment received own DISCERN score
15 specific items + 1 “global” item
Rating: 1 (criterion not met at all) to 5 (criterion completely met)
Score (sum of 15 items)a
• < 38 = Poor
• 39–50 = Fair
• 51–62 = Good
• 63–75 = Excellent
Completeness Rating No Overall completeness of information provided across a range of DSD topics All DSD Team Pages and DSD Team Links reviewed individually
Overall completeness score for site generated across webpages
25 items
Rating: 0 (information not provided about item) or 1 (information provided about item)
“Percentage complete” score for each site
  1. aBased on Rao et al., 2012
  2. Note: Prior to coding, coders reviewed each measure’s administration manual and/or scoring criteria. Coders practiced coding on DSD Team Pages of institutions that were not part of the DSD-TRN (found through a Google search), with discrepancies in coding resolved through review of manual and discussion under the supervision of the first two authors