Table 2 Demographic characteristics, understanding of diagnosis and family support

Age group, y

14–17

18–21

22–25

>26

n = 27

7

6

5

9

Living conditions, no. (%)

Overcrowded urban area

Rural area

Many close neighbors

n = 27

1 (4)

6 (22)

20 (74)

Perception of family income, no. (%)

Less than average

Comparable

Higher than average

n = 24

3 (11)

15 (56)

6 (22)

Level of education, no. (%)

Less than High School

Graduated High School

Some College

Completed College and beyond

n = 27

6 (22)

9 (33)

5 (18)

7 (25)

Understanding of diagnosis, no. (%)

Very well

Fairly well

Adequate

Poorly

n = 27

7 (25)

9 (33)

10 (37)

1 (3)

Person who helped with understanding diagnosis, no. (%)

Parents

Medical Doctor

Both parents and Medical doctor

Parents, Medical Doctor and Surgeon

n = 23

1 (4)

1 (4)

15 (65)

6 (26)

Family support

Very supportive

Uncomfortable discussing it

Avoid discussing it

Not supportive

n = 23

19 (82)

2 (9)

1 (4)

1 (4)