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Table 6 Self management and Participation (according to parents)

From: Physical, social and societal functioning of children with congenital adrenal hyperplasia (CAH) and their parents, in a Dutch population

  0-4 year 4-12 year 12-18 year Total
  n (%) n (%) n (%) n (%)
Total 12 (100) 62 (100) 32 (100) 106 (100)
Self management         
Daily medication use         
0 CAH med. 0 - 4 (6) 2 (6) 6 (6)
1 CAH med. 0 - 7 (11) 6 (19) 13 (12)
2 CAH meds. 9 (75) 29 (47) 11 (34) 49 (46)
3 CAH meds. 3 (25) 22 (36) 13 (41) 38 (36)
Medication at fixed time 11 (92) 53 (85) 24 (75) 88 (83)
Increased medication in past 12 months?         
0 times 0 - 3 (5) 5 (16) 8 (7.5)
1-10 times 11 (92) 43 (69) 19 (59) 73 (69)
> 10 times 1 (8) 11 (18) 5 (16) 17 (16)
Unknown 0 - 5 (8) 3 (9) 8 (7.5)
Participation         
Contact with school because of problems n/a - 22 (35) 8 (25) 30 (32)
Child exercises as much as peers without CAH n/a - 41 (66) 22 (69) 63 (67)
Child engages in a sport n/a - 46 (74) 31 (97) 77 (82)
  1. n/a = not applicable