Potential medical outcomes:
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(i) Quality-of-life using validated surveys
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(ii) Biochemical control of CAH
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(iii) Symptomatic control of androgen excess (hair loss, acne, hirsutism, amenorrhea, etc.)
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(iv) Compliance
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(v) Adult height
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(vi) Frequency of adrenal crises/hospitalizations
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(vii) Reproductive function
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(viii) Comorbidities (obesity, hypertension, metabolic syndrome, hirsutism/polycystic ovarian syndrome , testicular adrenal
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rests , and myelolipomas)
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Potential surgical outcomes (women):
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(i) Number and types of surgeries
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(ii) Complications (vaginal stenosis, urinary symptoms, urinary tract infections, etc.)
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(iii) Functional and cosmetic results
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(iv) Patient satisfaction
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(v) Menstrual regularity, fertility
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Potential behavioral health/psychosexual outcomes:
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(i) Patient and family adjustment
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(ii) Psychopathology (depression, anxiety, obsessive-compulsive disorder, eating disorders, substance abuse, etc.)
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(iii) Sexual function
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(iv) Gender identity
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